Peter Limbrick writes - 

Britton C (2001) Telling it how it is: Researching families’ perspectives—what is it really like for    families managing their child’s serious condition at home? The Handsel Trust*.

Council for Disabled Children (2004) The dignity of risk: A practical handbook for professionals working with disabled children and their families. National             Children’s Bureau.

Together From The Start—Practical guidance for professionals working with disabled children (birth to third birthday) and their families. (2003) FREE from Department for Education and Skills and Department of Health. (See also Early Support Pilot Programme. www.espp.org.uk)

Glendinning C, Kirk S (1999) The Community-Based Care of Technology-Dependent Children in the UK: Definitions, numbers and costs. Research report commissioned by the Social Care Group, Department of Health. National Primary Care Research and Development Centre.

Kirk S, Glendinning C (1999) Supporting Parents Caring for a Technology-Dependent Child.            A study commissioned as part of the Department of Health’s Supporting Parents Research Initiative. National Primary Care Research and Development Centre.

Limbrick-Spencer G (2000) Parents’ Support Needs: The views of parents of children with complex needs. The SOFTY Survey. The Handsel Trust.

Limbrick-Spencer G (2001) The Keyworker: A practical guide. WordWorks in association with the Handsel Trust.

Ratcliffe J (2003) Listening to Siblings: The experiences of children and young people who have a brother or sister with a severe disability. The Handsel Trust.

Townsley R, Abbott D and Watson D (2004) Making a Difference? Exploring the impact of multi-agency working on disabled children with complex health care needs, their families and the professionals who support them. The Policy Press.

Tozer R (1999) At the Double: Supporting families with two or more severely disabled children. National Children’s Bureau Enterprises Ltd.

Watson D, Townsley R, Abbott D and Latham P (2002) Working Together? Multi-agency working in services to disabled children with complex health care needs and their families—A literature review. The Handsel Trust.

West S (2000) Just a Shadow: A review of support for fathers of children with disabilities. The Handsel Trust.

National Service Framework for Children, Young People and Maternity Services.           www.dh.gov.uk or www.teachernet.gov.uk 

(*The Handsel Trust. www.handseltrust.org   E-mail: handsel.trust@virgin.net 

Tel/fax: 0121 373 2747. 43 Newman Road, Erdington, Birmingham, B24 9AG)