The 2005 edition of Contact a Family's
authoritative and accessible Directory of Specific Conditions
and Rare Disorders is now available from the charity, in book
form, on CD and on-line.
Expanded to embrace recent medical discoveries and developments,
the Directory contains 25 new entries on recently diagnosed rare
conditions such as Costello Syndrome and Ohtahara Syndrome; a
significantly more detailed 'Cancer' entry which highlights the
malignancy risk associated with a range of conditions; plus a
whole new section entitled 'Procedures and Management' which lists
support groups set up to help people manage common symptoms and
therapies.
In total, the Directory contains over 380 conditions and articles,
together with all the relevant support groups.
Used by professionals and families alike, this year's directory
is endorsed by Professor Al Aynsley-Green, National Clinical Director
for Children and Contact a Family President.
"The Contact a Family Directory is a great resource,
used extensively by doctors and particularly pediatricians in
diagnosing conditions. Not only does it provide wide ranging
and reliable medical information, but it includes invaluable information
on the support organisations which help families through.
"In my role as National Clinical Director, I naturally have
a great interest in the welfare of children, and that's why I
am lending my support to Contact a Family in their work to obtain
better lives for
disabled children and their families."
All entries are written or checked by medical experts, while a
distinguished medical advisory panel provides guidance on editorial
policy and direction.
Directories are available on 020 7608 8700, at £35 for the print
version; at £88.13 for a single user copy on CD-ROM which includes
extra information, and at £29.38 for a single on-line user.
Visit
www.cafamily.org.uk
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