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7.
New publication for health professionals working with disabled
children and their families |
Louise
Moffatt - Media Officer, Contact a Family writes -
NEW PUBLICATIONS FOR HEALTH PROFESSIONALS WORKING WITH DISABLED
CHILDREN
AND THEIR FAMILIES
Two new publications that could prove essential to health professionals
in their work with families with disabled children have been produced
by national charity, Contact a Family.
The first publication, entitled Parent Participation in health settings
is a practical guide to involving parents in shaping service delivery,
whilst the second is a leaflet for parents explaining how to assess
the reliability of medical information on the internet.
By providing examples of where parent participation has worked well
in a variety of settings - community, hospital, national and around
specific conditions - the Parent Participation guide provides ideas
for consultation at a time when health services are increasingly
required to involve parents. Not only does recent legislation
and government
guidance make parent participation mandatory, but, as the guide
points out, involving parents in service design results in better,
more cost effective provision. Designed to complement recent
policy which states why health professionals should involve parents,
the guide demonstrates how this can be achieved - often by employing
very simple methods.
The guide includes fourteen case studies, which cover, amongst other
things, working with parents to produce information on local services;
extending specialist play provision in children's wards; improving
A&E departments and establishing parents' forums which
will influence services and policy across the whole range of issues
affecting families
with disabled children. Top tips advise on finding parents, and
keeping them on board.
The leaflet, Finding medical information on the internet, was produced
in response to concerns from paediatricians and support groups who
found that some parents were getting the wrong information from
the web or were spending large sums of money on unnecessary treatment.
The leaflet contains a checklist of questions parents should ask
when reading medical websites. These include who produced
the website, who is it for, and how recent is the information provided. Asking
questions like this will help direct parents to websites produced
by respected organisations, and rule out those containing unreliable
information.
Both publications have been produced as part of Contact a Family's
Parents and Paediatricians Together project, funded by the Big Lottery
Fund. Both are free and are available from Contact a Family
on 020 7608 8700.
For further information contact Louise Moffatt on 020 7608 8741.
louise.moffatt@cafamily.org.uk.
Contact a Family -
http://www.cafamily.org.uk
For families with disabled children
209-211 City Rd, London. EC1V 1JN
Tel 020 7608 8700
Fax 020 7608 8701
Helpline 0808 808 3555 - free for parents and carers (10am - 4pm
Mon-Fri)
Minicom 020 7608 8702
Registered Charity No 284912
Company Limited by guarantee No. 1633333
Registered Office: 209-211 City Rd, London. EC1V 1JN
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